• By Jonathan Rodis, MBA
  • Posted May 11, 2017

Living with Marfan Syndrome: Part 2 of 2

It’s now 1990, and I’ve now had my life-saving heart surgery. After spending nearly a month in the hospital with health complications, I was finally able to go home. After another month at home trying to recover, I decided to head back to work to continue the job and career that I worked long and hard to achieve in executive management and …


  • By Jonathan Rodis, MBA
  • Posted April 13, 2017

Living With Marfan Syndrome- Part 1 of 2

Editor’s Note: We are so pleased to continue introducing new voices into the Ambry patient blog. This week we are honored to have Jon Rodis, patient advocate, tell us what it was like to be diagnosed with Marfan syndrome, an inherited condition that can cause heart problems, many years ago – well before genetic testing became available …