• By Rowan Shoemaker
  • Posted November 10, 2017

7 Things You Learn When You Get Neuroendocrine Cancer at 23

1. I learned what neuroendocrine cancer is At 23 years old, I was diagnosed with an aggressive form of neuroendocrine cancer. Initially, I remember thinking “great- not only do I have cancer, I have a rare cancer that I’ve never even heard of!” Now, after completing treatment and in remission, I feel as if I could teach a class on the subject! …


  • By Desiree Magee
  • Posted November 8, 2017

Genetic Counselors: Companions on the Journey to Rare Disease Diagnosis

Our daughter Daphne started missing developmental milestones at around 6 months of age. She was unable to sit on her own and unwilling to eat baby food.  We started down the path of diagnosis, which was long and exhausting and went like this:  First, we went to our pediatrician to document our initial concerns and obtain referrals for a physical …


  • By Michael Squier
  • Posted November 6, 2017

My Grandfather Lost His Pancreatic Cancer Battle, but Taught Me a lot About Life

*Editor's Note: This Pancreatic Cancer Awareness Month, Ambry's Creative Director, Michael Squier, is sharing memories and lessons learned from his grandfather, who lost his battle to pancreatic cancer. Ambry encourages everyone to know their family history of cancer. If someone in your family has pancreatic cancer, you could be at an increased …


  • By Vanessa Petersen
  • Posted October 24, 2017

I Mustache You a Question...

Did you know that 1 in 8 American men will be diagnosed with prostate cancer in their lifetime? And that your risk is increased if you have a brother or father who has been diagnosed? You may never know that men and their families are quietly battling this disease, even though the statistics are the same for women and breast cancer. So why does …


  • By Valerie Smart
  • Posted October 24, 2017

An 18-Year Survivor of Breast Cancer Shares Her Story

My name is Valerie Smart. I’m a wife and mother with three beautiful children, two boys and a girl. And I am an 18 year breast cancer survivor. This is my story. I was diagnosed with a stage II ductal carcinoma (a type of breast cancer) in August of 2000. I had eight cycles of chemotherapy and 30 days of radiation followed by Tamoxifin. I lost …


  • By Nicole Schweppe
  • Posted October 18, 2017

My Breast Cancer Journey, Part 2- How I Prepared for Chemotherapy

Editor's Note: It’s Breast Cancer Awareness Month, and we’ve teamed up with patient advocate Nicole Schweppe and local businesses to raffle off care bags stuffed full of essentials to bring comfort and entertainment to patients currently going through chemotherapy. Read to the end of this post to find out how to participate! I like …


  • By Nicole Schweppe
  • Posted October 12, 2017

My Breast Cancer Journey, Part 1- Your Thoughts are Your Reality

My breast cancer journey started on March 31st, 2017. I sat in the doctor’s office for my follow-up appointment after my lumpectomy.  Before the lumpectomy, I was told I had less than a 1% chance of the tumor being cancerous by three different doctors.  I sat there and told my doctor about my workout regime and that the incision was a little …


  • By Laurie Curtis
  • Posted September 28, 2017

How my Genetic Counselor Provided Guidance When I Needed it Most

I went in for genetic testing because cancer runs in my family: My maternal grandfather had prostate cancer; his sister had an unidentified cancer; my mother died from ovarian cancer; both her sisters have had breast cancer, one of which had bilateral breast cancer, 18 years apart; and 2 of my 3 female cousins have had breast cancer. One cousin …


  • By Jessica Profato
  • Posted September 25, 2017

Knowledge is Power: Learn More About Lynch Syndrome

Over the past few years, hereditary breast and ovarian cancer, and the BRCA1 and BRCA2 genes, have received a lot of media attention. From the perspective of a Genetic Counselor, I can say that these stories have helped raise awareness about hereditary cancer and the importance of understanding your family history. I hope that …


  • By Karen Malkin Lazarovitz
  • Posted September 21, 2017

How I Lost My Lady Parts But Gained So Much More

My story begins more than 9 years ago, when my father called me to say was having genetic testing. His cousin had just been diagnosed with ovarian cancer and had a known BRCA mutation. Many people I’ve spoken with have no idea that they can inherit this from their father, but I did. It is vitally important to meet with a genetic counselor before …