I hadn’t set out to be the “go-to-girl” for all things breast cancer, but when you’re faced with a challenge and come out on the other side fairing pretty well, I think people trust you. Maybe they’re just looking for positive support wherever they can, when they find themselves in a similarly difficult spot. It starts with a phone call,…
After testing positive for a mutation in my BRCA2 gene, I was on high alert. I rushed to all my doctor’s appointments and gathered a lot of information regarding preventive surgery options. I also did a lot of research on the statistics and newer medical studies regarding BRCA1 and BRCA2. I evaluated everything based…
I’m not sure which is more painful, fighting your own cancer battle or supporting a loved one through it. I’ve been on both sides of the fence and still cannot answer that question. Support for me came in a variety of forms and in varying degrees from virtual strangers on internet message boards, acquaintances, co-workers, friends, and family.…
I feel funny writing about sharing genetic test results when I’ve never done it myself, but don’t let that stop you from reading… I’ll draw upon my years in the clinic as a genetic counselor, speaking to many families about this topic, and offer thoughts from my side of the table. I have seen that it’s complicated for some families, but…
My mom was first diagnosed with breast cancer in 1989, when breast cancer was still whispered about and long before Angelina Jolie put genetic testing on the Hollywood map. My mom complied with the treatment recommended for her at the time, which included a lumpectomy, chemotherapy and radiation. Eighteen years later, in 2007, I was 34 years old…
I did finally come to terms with my decision to have a preventive bilateral mastectomy to lower my risk of breast cancer from my BRCA2 gene mutation. I was scheduled with my surgeon, but I was put on a rolling schedule, which meant my date was not set in stone. I asked at what point I got to keep my surgery date, instead of my date being…
According to the National Cancer Institute SEER (Surveillance, Epidemiology, and End Results) stat fact sheet on female breast cancer there were an estimated 12.3% of women living with breast cancer in the United States in 2012. 98.6% of breast cancer survivors diagnosed with early stage breast cancer are alive after 5 years or more. As early detection,…
Being a breast cancer survivor isn’t a static label. For me, being a breast cancer survivor has added another layer to the person I am and have become, and that has been an evolutionary process. It took time to get my energy back, but I now happily maintain a very active lifestyle. Again, it took time, and patience was not my strong suit.…
Whether a woman is facing the decision to have breast surgery as a treatment option for cancer or she is being proactive and having a preventive procedure done to reduce the risk of ever having cancer, the decision is not an easy one. Surgery can be a frightening experience for some people, and rightfully so. Although surgery is designed to physically…
When I was offered the option of having a preventive bilateral mastectomy, it was so overwhelming. I couldn’t think about. I couldn’t talk about it with anyone. I didn’t research the procedure. I just put off thinking about it entirely. I couldn’t handle it emotionally, and the thought of what it would do to me physically was very scary…