Making Waves with MAVES

Where Genomic Insights Meet Clinical Action

Joey’s Story: A Mother’s Reflection for Rare Disease Month
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Making Waves with MAVES
  • Cassidy Janis, MS, CGC
  • March 11, 2026

From Uncertainty…  Cassidy: When I met with my patient in late 2021, she had already faced bilateral breast cancer. First at age 52, and again in the other breast at age 55. In terms of family history, she only had a brother who was diagnosed with brain cancer and testicular cancer, so her family history didn’t indicate there was a strong …

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The Gene Scene: CALM2

  • March 10, 2026
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Where Genomic Insights Meet Clinical Action

  • March 4, 2026
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The Gene Scene: RB1

  • March 3, 2026
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Joey’s Story: A Mother’s Reflection for Rare Disease Month

  • February 25, 2026
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The Power of Progress: Philip's NF1 Clinical Trial Experience
  • Meagan Farmer
  • May 22, 2024

We had the opportunity to connect with Renie and Philip Moss ahead of Neurofibromatosis Awareness Month. Philip has neurofibromatosis type 1 (NF1). It is associated with many features but most often causes growths called neurofibromas (usually benign) as well as characteristic skin and eye findings.1 Malignant or cancerous tumors are rare.1 You …

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Navigating NF1: The Moss Family’s Story of Resilience and Hope

  • May 16, 2024
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Transforming Fear into Action and Advocacy: Our Family’s Lynch Syndrome Story

  • March 22, 2024
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Peace of Mind: Michelle Majewski Trusts the Patient for Life Program to Share Answers for Her Son Owen

  • November 14, 2023
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Passing on a Legacy of Health: Ben Huebsch Shares His BRCA Story for Men’s Health Week

  • June 14, 2023

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