Receiving genetic test results is never an easy process. It’s human nature to be concerned about the unexpected, especially when it can affect your future so significantly. When I had genetic testing back in 2007, it was almost a formality. I had coloncancer twice already, by the time I had genetic testing, my family history of colon cancer in my brother, father and grandfather was well documented. Finding out that I was positive for a gene mutation causing Lynch syndrome gave me some piece of mind and set my course towards more thorough screening. I started seeing a high risk oncologist and we made a management plan. That plan helped with finding my kidney tumor early, so the surgery was minimal and there were no residual effects. That plan also prepared me for my oldest son’s genetic testing.

Much like the conversation I had with my oncologist, I now have conversations with other parents with hereditary cancer about when to test their children.  Should it be before or after age 18, when they are adults and can make their own decisions?  I always answer that question with another question - what will you and your children do once they know the results? When my oldest son tested positive for Lynch syndrome at age 18, we were prepared.  He already knew my screening regimen, and since all of my kids have known me as a survivor, in every sense of the word, he knew that it wasn’t a death sentence - not even close. My oncologist assured him that, just like his father, she would look after him every step of the way. She didn’t sugar coat anything and said to him, “In all likelihood, you will have cancer, potentially at a young age like your father.” It was emotional, but she set the plan, and we left knowing what was ahead.

Ironically, my son had written about being tested for Lynch syndrome in his college entrance essays. At the time of submissions, he was unaware of his genetic testing result. He thought it better as a “cliffhanger.” Obviously the apple didn’t fall from the tree in his perspective either.  Since learning that he has Lynch syndrome, my oldest son has had two clear scopes and a clear set of CT’s (imaging tests).  He talks about it with his younger brothers, so that they’re prepared when the time comes for them to be tested.