• By Jessica Profato, MS, CGC
  • Posted March 31, 2016

Patient Advocacy Groups: How Can They Help?

In several of our posts, the importance of support throughout one’s cancer journey has been discussed. Eve Mart has discussed how she received support from friends and family following her diagnosis of breast cancer, as well as her experience providing support to others. We’ve also offered thoughts from a healthcare provider’s perspective,…


  • By Deepti Babu, MS, CGC
  • Posted March 17, 2016

The Buddy System: It Works for Hereditary Cancer, Too ( original)

We’ve covered a lot of territory with this blog, so thank you for coming on the ride with us. Theresa Smith recently talked about her experience of sharing her genetic test results with her family, and we offered a genetic counselor’s perspective on the same idea. This time, we’re focusing more on you – we’re exploring the idea of building…


  • By Deepti Babu, MS, CGC
  • Posted January 21, 2016

Advocacy groups: I got more out of it than they did

Several years ago when I was a new genetic counselor, doe-eyed and fresh out of grad school, I made sure certain topics came up in every session I had with a family. I covered the facts: the family history I’d collected, a review of genetic patterns, and any genetic testing options the family needed to consider. I’d usually write down notes…