Scaling Early Detection and Prevention: 5 Lessons from HCA Healthcare

Creating Program Champions: The Power of Staff Education and Ownership in Our High-Risk Women's Program

Building Trust in Digital Screening: Validating CARE’s Hereditary Cancer Risk Assessment
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The Gene Scene: SCN5A
  • Katherine Crawford, MS, CGC
  • August 19, 2025

Welcome to the Gene Scene! Each week, we will explore a gene from the ACMG Secondary Findings list—genes identified by the American College of Medical Genetics and Genomics as having clear, actionable health implications. These genes are included because they’re linked to serious but preventable or manageable conditions when identified …

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The Gene Scene: PMS2

  • August 12, 2025
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Scaling Early Detection and Prevention: 5 Lessons from HCA Healthcare

  • August 7, 2025
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The Gene Scene: TGFBR1

  • August 5, 2025
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The Gene Scene: PCSK9

  • July 21, 2025
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The Power of Progress: Philip's NF1 Clinical Trial Experience
  • Meagan Farmer
  • May 22, 2024

We had the opportunity to connect with Renie and Philip Moss ahead of Neurofibromatosis Awareness Month. Philip has neurofibromatosis type 1 (NF1). It is associated with many features but most often causes growths called neurofibromas (usually benign) as well as characteristic skin and eye findings.1 Malignant or cancerous tumors are rare.1 You …

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Navigating NF1: The Moss Family’s Story of Resilience and Hope

  • May 16, 2024
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Transforming Fear into Action and Advocacy: Our Family’s Lynch Syndrome Story

  • March 22, 2024
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Peace of Mind: Michelle Majewski Trusts the Patient for Life Program to Share Answers for Her Son Owen

  • November 14, 2023
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Passing on a Legacy of Health: Ben Huebsch Shares His BRCA Story for Men’s Health Week

  • June 14, 2023

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