- By Aaron Schmidt
- Posted January 12, 2017
How Can You Use Social Media To Find Support And Resources
Editor's Note: At this time of reflection as we begin the new year, we are re-posting this piece by an expert in digital media/communications to offer you guidance when navigating social media during a journey with cancer or other health issue. Today, hectic work schedules and other increasing demands on everyone’s time mean we are…
- By Georgia Hurst
- Posted January 5, 2017
Overcoming My Death Anxiety Related To Lynch Syndrome
The new year leaves me contemplating where I am now, and where I have been to get here. When I discovered I had Lynch syndrome more than five years ago, I was absolutely horrified and developed death anxiety. Every single aspect of my life became magnified. I could not help but feel as though a ticking time bomb had been strapped to my back –…
- By Tameron Harvell, MSN, RN, FNP-BC
- Posted December 22, 2016
You're Not To Blame
Editor’s Note: We are re-posting this entry by Tameron Harvell, a registered nurse practitioner, to raise the profile of “survivor’s guilt” – an issue that can be particularly challenging during the holidays. You’ve just received your cancer genetic testing results and no mutation was found! What a relief to know…
- By Dr. Dennis J Ahnen
- Posted December 8, 2016
Here’s To Our Families
I am, appropriately, finishing this post on Family Health History Day (the fourth Thursday in November, formerly known as Thanksgiving in the U.S.). The holidays are traditionally a time to get together with family, and what better time to focus on the importance of the health history? In this spirit, I thought we could focus on how a discussion…
- By Cynthia Rigali Lund
- Posted December 1, 2016
Despite Cancer, Holiday Abundance Awaits
Editor's Note: This is a continuation of Cynthia's initial experience of being diagnosed with hereditary ovarian cancer in 2012, which she began to tell us in her post from September 29, 2016. With an October diagnosis, the holiday season was going to be a new experience for our family of five. Although difficult in many ways, cancer…
- By Georgia Hurst
- Posted November 24, 2016
Collecting Your Family’s Medical History During the Holidays
Today is Thanksgiving in the U.S., and many of you will be spending a lot of time with your family – this is a stellar time to discuss collecting your family’s medical history. Multiple generations are usually present at holiday gatherings and the elders can be great sources of information about your family’s medical history. Recognizing…
- By Emily Dalton, MS, CGC
- Posted November 17, 2016
Why Family History Matters in Genetic Diagnosis
Editor’s Note: We are re-posting this entry by Emily Dalton, a certified genetic counselor, as National Family History Day approaches next week. Check back here to get tips from a patient advocate about collecting your family’s medical history. We’ve all heard that genetics plays a big role in the development of cancer, including…
- By David Dubin
- Posted November 3, 2016
Just Call Me “Above Average Dave”
“Superhero.” Has a nice ring to it, doesn’t it? Flattering, obviously. As someone who has survived multiple cancers, still plays and coaches soccer, had his colonoscopy footage used on national television, and does a lot of public work, I’ve been given a few titles. One of them is superhero. Thanks. But I worry that people, especially others…
- By Eve Mart
- Posted October 13, 2016
Metastatic Breast Cancer - A Lack of Awareness and The Hurt it Causes
Editor’s Note: In honor of Metastatic Breast Cancer Awareness Day, we are re-posting Eve Mart's piece on metastatic breast cancer to share her perspective as a patient advocate. Please share to help spread awareness. During the past 30 years, there has been a cultural shift in breast cancer advocacy and awareness activities. An abundance…
- By Tiana Adams, PA-C, MBA
- Posted October 6, 2016
Metastatic Breast Cancer: More Common Than You Think
Editor’s Note: In honor of Breast Cancer Awareness Month, we asked a Physician Assistant with years of experience in the field to tell us about a little-known form of breast cancer from the healthcare provider’s perspective. Next week’s post will focus on this issue from the patient advocate’s side of things. Please share to help spread…